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Jonathan Powell was born to Melissa and Tim Powell on March 16,
1998. Jonathan has always been a healthy,
fun-loving, full of life child. He is truly a
blessing to all those who know him. On May 15, 2000,
Jonathan was hospitalized for an elevated white
blood cell count and fever. The next day our world
collapsed. A large tumor the size of a small soccer
ball was found in his abdomen area by ultrasound and
x-ray. On May 18th he had surgery to remove the
tumor and his left kidney. Following many tests,
including a bone marrow aspiration, CT-scan, bone
density scan, MRI and MIBG scans, two small spots
were found on his knees; therefore he was diagnosed
with Stage IV Neuroblastoma.
He had finished seven
rounds of chemotherapy at Brenner Children's
Hospital in Winston-Salem, North Carolina. He
completed 16 rounds of radiation. On January 18,
2001, Jon underwent his Peripheral Blood Stem Cell
Transplant at Duke University. In April 2001, Jon
was enrolled in a Phase II Clinical Trial of 3F8
Monoclonal Antibodies at Memorial Sloan Kettering
Cancer Center in New York City and completed three
rounds. In February 2002 he completed his one year
follow-up studies at Duke University Medical Center.
After suffering a seizure in May and undergoing many
tests, a small tumor was removed from the right side
of his brain...Neuroblastoma.
In August 2002, Jon
completed 18 round of cranial radiation at Duke
University. The following month Jon underwent a
complete series of tests which yielded NO EVIDENCE
OF DISEASE. On October 16, 2002, after Jonathan had
a stiff neck for a week or so, an MRI showed massive
tumor wrapped around his complete spinal cord. He
started radiation the next day and then on Saturday,
October 19th, Jonathan lost his battle with
Neuroblastoma. |
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